Inform the direction of research for rare genetic conditions
Researchers from The Molecular Therapy Laboratory at Murdoch University are hosting a Community Conversation and invite people with rare genetic conditions and/or their parents and carers to share their experiences.
The information gathered during the conversation will guide the development of educational resources, and support families in understanding the benefits and limitations of emerging personalised medicines.
A $70 honorarium (gift card) is offered to attendees and light refreshments will be provided.
Prior to the Community Conversation, a tour of the Personalised Medicine Centre laboratory is offered to any interested attendees.
