Explore the latest developments in the RGU sector
Alike WA is hosting a Networking Sundowner event to celebrate Rare Disease Day 2026 and invites parents and carers of children with Rare, Genetic and Undiagnosed Conditions (RGU) to join them.
This event also marks the launch of Alike WA’s new online platform as part of their RGU Program. The evening will provide a space for parents and carers, and people with lived experience to come together to connect, share knowledge, and collaborate.
The program includes:
- Networking sundowner for in-person attendees
- Showcase of the new online platform, available both in person and online
- Panel discussion with sector experts and lived experience voices – Beyond the Gaps: Lighting the Future of Rare and Undiagnosed Care
- Opportunities for an interactive Q&A session
Guests are welcome to stay and continue networking after the formal program concludes.
